Jun 30, 2010

Posted by in Life in a Fairytale | 10 Comments

Another specialist to add to the list

PhotobucketSo I attempted to vlog this but truth be told, it’s too hard for me. Tomorrow we are on our way to Salt Lake City to take Myles to Primary Children’s for a visit with a Neurologist. I will be honest. When I first heard that word on Monday, I was panicked. The last thing you want to hear in regards to your children are terms like Neurologist and Cardiologist or how about seizures. They just have to be wrong!

Over and over I keep running the episodes in my head. Was I wrong? Did I just see something that really wasn’t there? Even though Myles was born five weeks early, he has surpassed everyone’s expectations. So why now? 2 weeks ago, we were at a church function. I was walking around holding him upright in my arms. When I looked down, my heart dropped. His lips had a blue tint to them. Immediately I thought, “No it’s just the lighting.”  I asked a couple friends. The first friend said she noticed it as well. By the time the second friend looked, it was gone.

PhotobucketHere it was a Friday and I thought that it was just a sign of his heart issues. It didn’t last more than seconds so I put it off. Over the weekend, it didn’t happen again. When I arrived in Park City on Thursday I wanted to give him a bath. When I brought him to the bench to dress him, I noticed it again. This time his arms and legs were stiff and extended. Similar to when a baby is startled. Once again it lasted seconds. It didn’t happen again all weekend but this time I called and we got him an appointment Monday. I wasn’t prepared to hear what the pediatrician said next. He didn’t believe this was part of the heart problem. He feels that Myles could possibly be having seizures.

Seizures?? Not my son! So here we are. Waiting to see a specialist. I’m praying for good news. That’s all I can do right? I also wonder what other hurdles we will be overcoming  with this little guy.

  1. Praying for you and your family.
    Kasey@All Things Mamma´s last [type] ..Planning A Trip With Kids

  2. Oh, Gena. This must be so scary! I am really thinking about you and will be sending lots of love to sweet Myles and your family tomorrow. He’s such a special little boy.
    Kate @ The Shopping Mama´s last [type] ..Thursday Giveaway Linky

  3. Oh Gena, I am so, so sorry to hear about this. My heart is breaking for you, but I am sending prayers and good thoughts your way. Little Myles will be okay, and hopefully whatever is going on can be fixed easily.

    (hugs)

  4. ((((Gena))) You and little man are in my thoughts and prayers.
    Shana´s last [type] ..Wordless Wednesday

  5. Many prayers for Myles and his family. May his problems be found and treated if necessary. My heart is with you today.
    Marj McClendon´s last [type] ..Come back little Shayda-

  6. Gena, I am so sorry! I had no idea this was going on at EVO. Your baby boy is so, so sweet. I’m so glad I found you at EVO. You and your little guy will be in my thoughts and prayers.

  7. We’re also in the wonderful world of neurologists. Timothy started having some suspected seizures that I noticed when he was about 10 months old. Waiting is the hardest part. Waiting for referrals, waiting for test results, waiting for doctors to return phone calls. I can’t say it gets easier. Just know you aren’t alone.

    If you ever need to chat, feel free to email me.
    Elizabeth´s last [type] ..movie review win

  8. Know that your in my heart and prayers… When your child is sick, you feel so helpless. Let us know how things turn out, we all are your extended family and care deeply. {{{Hugs}}}
    Lorie Shewbridge´s last [type] ..Memory Rewind – Baby Nano

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